June 2019

This is becoming just the most insane, health-issues - laden year of my life.  I thought last year was terrible when I kept going into and out of Cymbalta withdrawals.  But now this is even worse.

Well, we don't know what is going on.  My abdominal ultrasound was normal.  My bloodwork was normal.

I have variously thought it was: gallstones, gallbladder cancer, stomach cancer, NET tumor, ulcers, Leukodystrophy, Creutzfeldt-Jakob prion disease, Brain cancer, dysautonomia, Ehlers-Danlos, mitochondrial disease shutting down my stomach and muscles, porphyria, etc etc


I don't know!  I have alot of abdominal pain, but I also have a lot of everywhere pain.

Problems:
I get sick when I eat.
I feel dizzy.
I feel ALOT of pain- pain in different places,
I feel EXCESSIVELY weak.  I have never even imagined the sort of weakness that I feel now, on a daily basis.
Extreme pain and tiredness with eating.
I am very food picky- most everything makes me sick.

Sonya asked what my body pain could have to do with Dad's cancer.  UGHHHH  Why am I even seeing a psychiatrist.  lol.

What's unclear to me, is - is that Gastroparesis (inability to eat), or is this an ulcer (pain from a sore or multiple sores, within the intestines), or just some weird thing that I have never heard of, or literally cancer.  Did I ever have porphyria, or did I just get sick with something?

Lev says that he's sick too- but he's such a stress case.. who knows if he isn't just stressing out about work 24/7.

Uggh I feel sick.

Dr. Berg says that ulcer treatment is: DGL (licorice), zinc-carnosine, cabbage juice (yay!), chlorophyll meaning veggie greens (which of course made me sick).

I suppose I could just try to live, not fix it, and the more symptoms that come up, the more I will be on my way to a (deadly) diagnosis..


I went to the ER twice in the last two weeks.  The first time I was beside myself with having had all these MUSCLE problems over the last two weeks, and had basically felt really sick and unwell and gone into mom's room and said I didn't feel okay.  The second time, luckily dad took me and the place was FREEZING.  It took 4 and a half hours to be seen, I think.  I declined blood tests, because they are always normal.  They didn't tell me to change clothes or to put in an IV.