Monday, January 14, 2019

How I'm doing on Lyrica/ Gabapentin taper

I'm doing terrible, I'm unhappy, I'm in ALOT of pain which is not letting me go out and drive or do anything to speak of.  Although I have been to synagogue, it really hurts my neck and I can't stand during the standing prayers.

Okay so here's what happened:  I went to the rheumatologist and got prescribed Lyrica.  I was supposed to taper from Gabapentin at 300 mg every few days.

When I started the taper, I was surprised that my daily waking up in back muscle spasms stopped happening.  I had a few instances of side effects - headaches, but not too much.  It seemed like I was just in a generally huge amount of pain.  My muscles were all tight, I wasn't doing much besides staying home and occasionally walking Carly to get out of the house.  Its hard to explain - I was in more pain, but I was in less distressing muscle cramping.  So I thought I was doing fairly well, all things considered, as compared to how awful and horrible I was expecting.

But then a couple weeks in the stomach stuff really started.  Those fast bowel movements, light colored, and full of gas.  The gas wouldn't go away and it got terrible after a shit.  It was really weird. I'd wake up okay, but then as soon as I ate and had a BM, I'd be in pain for hours and hours.
I tried a slew of antacids over the counter, all of which didn't work for more than a minute.  I tried: Mylanta, milk of magnesia, TUMS, and Pepsid AC.  I had a funny week of trying them and feeling various muscle releasing (for just a few moments), which made me wonder if my muscle pain has something to do with stomach gas?  I mean what?  Why else would it cause that?  But on the whole, I couldn't figure out what was happening.  It didn't go away.  I went on Omeprazole, have been on it for 5 days.

Still taking Cymbalta.

Now as far as LYRICA:
I tried Lyrica once- 25 mg, and felt kind of helter-skelter pain relief.  I tried it because I was in so much pain from Gabapentin withdrawal, but didn't want to take more Gabapentin since I want to taper off it.  I tried it sincerely due to needing pain relief.  I am in more pain than I can tolerate.  Like I can't think or anything in this much pain.  I would if I had to, but its really horrible and I can't move and I can't be happy and I hate my life and should I kill myself, I don't know..?  etc.
I also tried 50 mg and that worked really well, gave me lots of pain relief.  I actually just laid down in bed and ended up napping a few hours. 

So Lyrica is giving me withdrawal symptoms too! After its initial pain relief- and boy do my muscles relax thank god.  Its like a feeling I don't even recognize, but it feels so right.  But anyways, with Lyrica, the pain relief has been sporadic - place to place to place, not all over.  Not only that, but it causes lots of cramping, at the same time as the pain relief.  And then yesterday, I took 50 mg, and got all wierd and pain relief, but,  when I slept i just woke up in pain with spasming muscles.  FUCK ME is how I feel.

What the fuck to do?  When I go off my meds, I get the stomach problem that doesn't go away, and gets worse with time.  And pain.  Which of course I need the meds to help with.  Dear god.  

I am so fuckign frustrated.  I hate that these meds cause me so much pain and cause me to feel like I am in a spiral of increased pain that i am never going to get out of. 


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